The AARP has released a new study of family caregiving in Massachusetts, finding that almost 1.5 million Massachusetts residents — a quarter of all adults — are caring for a family member or friend. Here are some of its findings:
- Nearly three out of 10 caregivers are members of the sandwich generation, meaning that they are also caring for a child under the age of 18.
- A third care for someone with Alzheimer’s disease or other forms of cognitive decline.
- A quarter live with the person for whom they are caring.
- Most spend less than 10 hours a week in their caregiving role, but three in 10 spend at least as much time as they would for a part-time job.
- Half care for a parent, 8% for a spouse, 10% for siblings, and 9% for a child with a disability.
- Six in 10 caregivers are employed and a third of those who are say it has adversely affected their work; two-thirds report feeling stressed balancing work, family and caregiving.
- Family caregivers provide assistance ranging from hands on help with eating and toileting to transportation and assisting with finances.
- More than three quarters have spent their own money to provide care.
- Most report adverse effects including emotional stress, failure to exercise or maintain a healthy diet, financial strain and difficulty taking care of their own health.
Turning to public policy:
- Only 8% of respondents to the AARP survey feel that Massachusetts government provides caregivers with enough support, though half are unsure.
- 85% of respondents would like Massachusetts to offer a state tax credit to caregivers.
- Three quarters would support a voucher program for respite care and an advisory council on family caregiving.
- Seven out of 10 would support payment to those caring for a spouse.
- Eight out of 10 would support more funding for long-term care services and support.
These results are consistent with a national survey of family caregivers conducted by the AARP and the National Alliance for Caregiving. It certainly makes sense that families care for their parents and grandparents as they age and need assistance. The questions are how can public policy support them and ease the burden and what support there is for those who do not have family to assist them when needed. Representative Thomas Stanley and Senator Pat Jehlen have introduced to legislation to establish a family caregiver commission to seek answers at least the first question.